Perhaps it is time I write about cancer and how it has shaped my life over the last few years.
I was married to a wonderful, loving, funny man for many years. The details of our meeting and our courtship and our life together would make a book all on their own. We were as much in love as two people could be and that love continued to grow day by day, year after year. It was a magical relationship where it was safe to explore the possibilities of life, safe to disagree, safe to come back together without reprisals. It was my haven and my refuge. And now, it is gone.
My husband had a 5 ½ year battle with non-Hodgkins lymphoma. It began in his spine, was treated aggressively, but eventually the combination of the effects of lymphoma and the cumulative effects of all the treatments wore him out and he succumbed. We fought the beast with everything at our disposal, me at his side during every treatment (except radiation, of course) until he just wore out. On the day he died, I wrote:
“Today, my lover, my best friend, the father of my child, the sun, the moon, the stars and the axis of my universe has died.
To those who know him…knew him personally, the loss will be devastating. To those who knew him through me, tragic. But all who knew him, however that was accomplished, recognize that they have been touched by a greatness of spirit that was Harry Horrox. Even the nurses who did not know him before the CCU recognized it….”
After his death in 2003, I was at first numb. I didn’t know where to turn or what to do. So after his memorial, I just continued doing what I had done before. Went to the same jobs, made the same movements, but when I got into my car to go home at night, I would start to cry. I would cry, singing songs to him which made me cry more, only stopping when I had to converse with someone or stop and go into a grocery store or something equally mundane. And I endured all the adjectives so lovingly lavished on me…strong, brave, courageous…. when all I felt was empty and alone. Anger would eventually come to the surface and join the grief, but mostly I just felt abandoned.
I tried to logically come up with things to do that were productive, considering I was fairly young and could reasonably expect to be around for a while. In fact, I told my son, when he expressed worry that he might lose me, too, that I was not some delicate flower who was going to wither away. Even though a part of me wished I could have. But even though my son was at an age where he needed to be breaking away and making his own place in the world, not staying home taking care of his mother, I recognized that he needed me for stability. And my own mother was in her mid-80’s and not very well, so she needed me to stand by her. So on the outside, away from home, I had to function. And for the most part, I did. You often hear it quoted that the “widow” should not make any major changes in her life for at least a year because of the emotional burden of grief. And so I didn’t make changes. And then the one year anniversary of his death arrived and things started to go terribly sideways!
First, on the day after that awful anniversary, I got shingles…on my face. They are painful, annoying, scary and require a lot of attention. But I dealt with them, and continued on in my narrow rut. Then, I got an abscess, which was even more painful and required even more attention. Still I dealt with it and went back to plodding that path. Then an allergic reaction to the antibiotic used to treat the abscess. I had been on so many different drugs by this time that my bathroom looked like a pharmacy! And then came the big blow. I was told that I would need a biopsy of a growth in my left breast.
It seemed so logical to make that appointment for a mammogram. The health plan I had continued under COBRA from my husband (because it was so much better than the one from my employer) was dropping my HMO as an option, so I scheduled some routine tests before the end of the year. Kind of unusual, since I had been there so often in the last 3 months of 2004 due to the aforementioned ailments, but schedule them I did. And when they called me back for more on December 30th, I remember being a little shaken, but not really nervous. Then an ultrasound and the pronouncement that I needed a biopsy!
The changeover to a new health plan was not easy when I was under duress, but I did manage to get it done. And on the 13th of January, I went for a needle biopsy. And I knew before I left there that this was not going to be good news. And that’s when I started making changes.
The next day, I left my job. My mother had been hospitalized just a few days before and I knew from my experience when my husband was ill that I could not handle everything for her health and mine and work, too. Plus I knew that my employers were overly dependent on me and were already not very sympathetic to my being gone. So I made a break, although at the time I thought it would be temporary, a medical leave. But since they replaced me in 3 days, I knew that this was what was meant to be and I never looked back.
Surgery found 2 tumors. That lead to chemotherapy and then radiation. It was difficult, it was lonely, it was painful. But I managed. And a whole group of angels gathered around me for the treatments; women friends from different periods of my life – ladies from the opera chorus, friends I met through work and a good friend I met on a field trip when my son was in the fifth grade, stepped up to take me to treatment and in general, to make me feel a little less alone. I will be grateful to them for as long as I live for the generosity of their hearts.
During my radiation, my mother, who had been failing all year, took a turn for the worse and eventually died. It was almost more than my heart could stand to watch her suffer, but losing her was yet another blow to my already delicate emotional balance. And yet, it was a release from my role as caregiver which I had played for so many years. And a sudden realization that I don’t know what’s next!
I am convinced that there was a plan to my having cancer. Just as I am sure that my husband’s spirit was there, guiding the radiologist to see the nearly infinitesimal lumps that were the beginnings of breast cancer. I think I was not listening. There are things for me to do. I don’t really know what that is completely, but I’m trying to watch and listen and be open to it when it presents itself. I am sure that singing is part of it, but not the only part. So, what then?
This past week, I have had 3 opportunities to be touched by breast cancer in others. First, a friend, one of the wonderful women who helped me, had a surgical biopsy after a needle one was inconclusive, for which I naturally focused on the “don’t worry till you have something to worry about” attitude. Then a friend asked me to give advice to another singer who is facing chemo after surgery for breast cancer because she is wondering if she will be able to sing through her treatment (I did…). And then, another woman friend, who has metastatic breast cancer sent out an update on her current battle and test results. This woman has kept her friends up to date with an incredible journal of her battle with breast cancer. She is inspiring in her faith and her writing allows others to learn and walk beside her in her journey. This week, she spoke of finding a counselor to help her talk through the issues of being a mom with 3 small children, fighting a disease that may take her away from them and the husband she loves.
In each of these cases, I found I approached the encounter with concern, but it was not until I started to write back to each of them that I discovered the depth of feeling I have for the subject. I leapt to counsel the woman who is afraid she won’t be able to sing, giving her all the encouragement, telling her of pitfalls specific to the singer. To the friend with the ongoing battle, I felt compelled to write, for I know her new counselor and have always been impressed by her gentle, intuitive nature. But I kept writing and deleting things from the email, finally keeping it to 3 paragraphs because the help she needs right now is more concrete (child care, shuttling relatives..) than I am able to give with my schedule right now. But it was the friend with the biopsy whose results were great (no cancer!) that surprised me the most. She wrote to me of my example to her and how she kept thinking about that during the month long ordeal from mammogram through surgery to get the results. The overwhelming flood that poured forth when I started to write…I was completely taken aback! I had no idea that I was holding all that in!
And yet, it felt so right. Maybe I need to explore this need to help other singers with cancer with their journeys? Maybe it is the purpose I am looking for? Maybe that is what being a survivor really is for me? A chance to share, to help others understand that early detection can mean that cancer can be just a blip in your life instead of a brand you wear forever? That a return to good health and a productive life is the norm rather than the exception?
Wow…. That’s a lot to think about. And a responsibility to carry. It would mean that being a productive, successful musician can be more than a personal triumph. It could be a concrete example to others facing the dreaded “C” word. That it can be a “c” instead? That down time and nurturing oneself is required, but that with care, you can work right through your treatment and come out the other side with a productive life and a future. The hair grows back, the scars heal and life can go on. There will always be grief for your lost innocence, just as we sometimes long for the less complicated days of childhood. The trick is to lose that judgmental attitude that says that is better or that now you are damaged goods. There are compromises for sure. But life is about compromises and this one can eventually become no more significant than your having had chicken pox as a child or a broken leg that has mended. Of course, that means it has to be detected early and treated. And all cancers are different, of course, so not everyone’s prognosis will be as good as mine, like my friend’s cancer which metastasized. But in a town where so much research is happening with cancer, I can be incredibly hopeful that detection and treatments will continue to improve. And I can share that optimism, maybe by more than just example.
It is a lot to think about. And maybe it is why I am still here having experienced the grief of loss for my husband, my mother and my own personal naiveté. Honor what has gone before, honor your grief and move forward to find your new place in the world. God doesn’t leave us behind to take up space. We all have purpose. It’s all a journey to find that purpose.
It’s not easy. It’s never going to be easy. But I have to leave myself open to the possibilities. And keep putting that one foot in front of the other. It has been my motto since my husband was first diagnosed and it still works today. Some days, you can’t quite get it all the way out in front, but even if you shuffle, you are still moving forward.
A domani e un altro passo avanti.